• Announcing the Registry for Eosinophilic Gastrointestinal Disorders!

    3 Apr 2015 | News | eosfamily

  • Have you or your child been diagnosed with EGID?
    • Eosinophilic Esophagitis (EoE)
    • Eosinophilic Gastritis (EG)
    • Eosinophilic Colitis (EC)
    If so, you are invited to sign up for the Rare Diseases Clinical Research Network (RDCRN) Contact Registry. What is the RDCRN Contact Registry? The RDCRN Contact Registry is a way that patients with rare disorders, like EGID, can receive information about research studies, eligibility for participation in clinical studies/trials, and updates on results of such studies. Why join the RDCRN Contact Registry? Patients who participate in research make it possible for researchers to find new treatments, create new studies, and work for the improvement of all EGID patients. It can also help connect you with other Patient Advocacy Groups (PAGs) To find out more about the RDCRN Contact Registry, or to join please visit this website: www.rdcrn.org/CEGIR
  • 1 comment

    Glad to see these diseases coming out of the closet. I assume that as humans become more allergic to the environment, this rare disease may become common.

    Reply