Resources
The following are resources that we have found to be helpful for our families:
Eosinophilic Disorder Related Resources
- CEGIR (Consortium of Eosinophilic Gastrointestinal Disease Researchers) is dedicated to improving the lives of individuals with gastrointestinal disorders through innovative research, clinical expertise and education via collaborations between scientists, health care providers, patients , and professional organizations.
- Cincinnati Center for Eosinophilic Disorders
- American Academy of Allergy, Asthma & Immunology: Eosinophilic Esophagitis
Educational Videos
- What is EoE? https://youtu.be/YiL-o7HXKQs
- Living with Eosinophilic Disorders: Psychological Effects & Coping during COVID-19, A Conversation with Dr. Nicole Zahka – Meeting Recording:
https://zoom.us/rec/share/uNdzBb7L2D9IfpWV6FzOaKUmP8e6aaa80HBL_KZcyUnnx3Pqlcl4-BDH2qfGLl3U - Kids with Eosinophilic Disorders https://app.vidhug.com/ByljouOmjU/hug
Other Educational Videos
- Symptom Scores (Pediatric and Adult) – QOL Scores – Dr. J. Pablo Abonia
- Nutritional Management of EoE – Dr. Carina Venter
- Psychosocial Implications in EGIDs – Dr. Nicole Zahka
Videos found here: https://www.rarediseasesnetwork.org/cms/cegir/Learn-More/Educational-Videos
Eosinophilic Disorder Related Resources
- American Partnership for Eosinophilic Disorders (APFED)
- AusEE Inc – Australia
- Campaign Urging Research for Eosinophilic Disorders (CURED)
- EOS Network – United Kingdom
