Who we are
The Eosinophilic Family Coalition is a registered 501(c)3 organization with a mission to support and enhance the lives of families living with Eosinophilic Disorders while advocating for these families and educating those around us. We accomplish this through a variety of programs that have a common goal of bringing families together and empowering them to face their challenges head on knowing they have a strong support system backing them.
What is an Eosinophilic Disorder?
Eosinophils are a normal cellular component of the blood and also of certain tissues, including spleen, lymph nodes, thymus, and the submucosal areas of the gastrointestinal, respiratory, and genitourinary tracts. Counts of 0 to 450 eosinophils per cubic millimeter of blood are considered within normal limits. Eosinophilic disorders occur when eosinophils are found in above-normal amounts in various parts of the body. Eosinophilic disorders are diagnosed according to the location where the levels of eosinophils are elevated.
What is an Eosinophilic Disorder?
Eosinophils are a normal cellular component of the blood and also of certain tissues, including spleen, lymph nodes, thymus, and the submucosal areas of the gastrointestinal, respiratory, and genitourinary tracts. Counts of 0 to 450 eosinophils per cubic millimeter of blood are considered within normal limits. Eosinophilic disorders occur when eosinophils are found in above-normal amounts in various parts of the body. Eosinophilic disorders are diagnosed according to the location where the levels of eosinophils are elevated.
Our Focus
We help educate others and provide support to families across the US encountering Eosinophilic Diseases
Programs
EFC offers a variety of programs including Family events, Education, Mom’s Night Out, Camp Courag”EOS”®, CAPES program, and other opportunities to be with others who understand what living with an Eosinophilic Disorder is about.
Research
EFC is proud to be a part of Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) that is funded by the NIH and RDCRN, by representing the patient voice in cutting edge research, education, and collaborations with scientists and health care providers.
Resources
Eosinophilic Family Coalition offers a growing list of providers and specialists for Eosinophilic Disorders, quick resource definitions, and links to other Patient Advocacy Groups.
Patient stories
Living with an Eosinophilic Disorder can be challenging. Connecting with others, and learning from their journey can often times provide hope that Eosinophilic Disorders can be managed with the right support.
Ethan's Journey from Amy Zicarelli on Vimeo.
Our chapters
The leadership of our Chapters are thought leaders who have made a significant contribution to our coalition. Each and every one of them brings a unique set of skills and expertise to our organization. We have chapters in the following locations.
DALLAS
CINCINNATI
INTERESTED IN A CHAPTER NEAR YOU?
If you would like information about how to start a chapter in your location, please click the button below and contact us.
NEWS
Join the New Contact Registry! EGID Partners
Join EGID Partners and participate in EoE and EGID research!
EGID Partners is a new online cohort of patients with eosinophilic gastrointestinal diseases (EGIDs). It is a way to conduct clinical research through surveys over time, not just as a one-off project. Unlike other registries, EGID Partners engages patients to guide the research. People without EGIDs are also encouraged to join so survey responses can be compared.
Visit egidpartners.org to learn more and to become a Partner!
Eosinophilic Family Coalition Organization Update!
Eosinophilic Family Coalition launches new organization updates during Eosinophilic Awareness week, including new organization logo!
Functional role of kallikrein 5 and proteinase-activated receptor 2 in eosinophilic esophagitis
Marc E. Rothenberg, MD, PhD discusses the exciting findings regarding the role of proteases and protease inhibitors in a food allergic disease of the esophagitis, eosinophilic esophagitis (EoE), and how this knowledge and an FDA-approved drug may lead to new...
