Brett’s Story

by c1870278 | Aug 4, 2020 | Stories

My son has had feeding difficulties since he was a newborn.  He was born slightly prematurely at 36 weeks with his twin sister. He arched his back and turned his head at an awkward angle when feeding, would pull his legs up in pain, and was a very fussy sleeper....

Eosinophilic Family Coalition Organization Update!

by c1870278 | Aug 4, 2020 | News

Eosinophilic Family Coalition launches new organization updates during Eosinophilic Awareness week, including new organization logo! Watch our update video...

Functional role of kallikrein 5 and proteinase-activated receptor 2 in eosinophilic esophagitis

by c1870278 | Aug 3, 2020 | News

Marc E. Rothenberg, MD, PhD discusses the exciting findings regarding the role of proteases and protease inhibitors in a food allergic disease of the esophagitis, eosinophilic esophagitis (EoE), and how this knowledge and an FDA-approved drug may lead to new...

Patients Power Research in Eosinophilic Gastrointetinal Disorders

by c1870278 | Aug 3, 2020 | News

Researchers learn from our patient families what it’s like to live with an Eosinophilic Disorder and ideas about new research and treatments. https://www.rarediseasesnetwork.org/spotlight/cegir-rdd

Ethan’s Story

by c1870278 | Aug 3, 2020 | Stories

Ethan is a 7 year old boy with Eosinophilic Esophagitis. HIs mom Chelsie shares his journey and advice for anyone that is newly diagnosed, living, or caring for someone with an Eosinophilic Disorder. Watch their story below Ethan's Journey from Amy Zicarelli on...